Posts Tagged ‘toddler’s diarrhea’

It’s Like I Can Breathe Again. And I Didn’t Know I Was Holding My Breath.

Monday, November 15th, 2010

His lips are moving, but I can’t hear him.  The second the specialist says Latham is healthy, my head floods with water.  And the waves crashing in my mind make it impossible for me to listen to what the pediatric gastroenterologist is saying. 

So I squint.  And try to read his lips.  But I can’t.

I glance at David and hope he’s hearing, but when I ask him later to repeat what the doctor said, he can’t. 

So we try to put together our puzzle starting with the boarder and working our way in, and yet, we’re missing pieces – big pieces – and we don’t have the box to guide us.

When we get home, I call the Children’s Hospital and leave a message for the doctor.  When he returns it, he says he’s not surprised when I tell him I couldn’t really hear what he was saying.  He says it happens all the time when he delivers both really good and really bad news.  And he couldn’t be more thrilled, he said, to give us the really good kind.  Again.

He says Latham is healthy.  He does not have Cystic Fibrosis.  He does not have Celiac Disease.  He does not have Irritable Bowl Syndrome, food allergies, Leukemia, or any of the other awful diseases or conditions our toddler has been tested for.  What he does have:  Toddler’s Diarrhea, a condition that usually occurs in children between the ages of 6 months and 3 years, and causes loose, watery stools and severe weight loss.   Although Latham does have chronic diarrhea, the doctor went on to say, children with toddler’s diarrhea do have a normal appetite and grow and develop normally.

Latham has suffered on and off with chronic diarrhea and severe weight loss for the past 8 months and we’ve been relentlessly searching for answers to his health problems for just as long.  It has been a long and scary road for our family and we are extreemly relieved to finally have an answer to the problem that’s been plaguing him. 

It’s like I can breathe again.  And I didn’t realize I had been holding my breath.

I also want to thank all of you for sharing in this journey with us.  We appreciate your supportive comments, thoughts, and prayers, more than you could ever know.  Thank you.

I’m Losing my Mind.

Wednesday, October 6th, 2010

I’m losing my mind.

Completely.

Worrying.

About him.

There’s a haze.  And it’s engulfed me.

Entirely.

I can’t sleep.  I can’t eat.  I can’t breathe.

And yet, I do.

Because it makes others uncomfortable when I don’t.

Or if I say anything other than, “He’s fine.”

But he’s not.

Fine.

He is losing weight.

Again.

Latham.

So, we draw blood.  Collect samples.  And run tests. 

But they can’t figure it out.

The doctors.

And so, more blood.  And more samples.  And more tests.

And still.

He loses weight.

And yet.

 He eats.  And drinks.  And plays.

He laughs.  And sleeps.  And gives kisses.

 But his single symptom  is swallowing him.

Slowly.

And no one knows why.

And as I watch him, helplessly.

I’m losing my mind.

Completely.

 

Editor’s Note:  I wrote this blog weeks ago when I was at my most desperate with Latham’s health.  I didn’t want to share it with you because I was so scared.  And to be honest, I still am.  But I’ve always treated this blog as a journal for our family.  And Latham’s health is something that needs to be chronicled in it.

This is Latham’s second serious and chronic bout with diarrhea in 6 months.  It seems to pop up out of nowhere and ravage his little body for about four weeks.  But really, the only two symptoms of the condition are severe weight loss and chronic diarrhea.  And oddly, as soon as it starts, it stops. 

Doctors have poked and prodded my 2 year old and tested him for everything from Cystic Fibrosis and Leukemia to  Celiac Disease and food allergies.  And they’ve found nothing.  Nothing. 

We have an appointment with a pediatric Gastrointestinal specialist next month and have high hopes he’ll be the one to figure out what exactly this is that’s plaguing our little Latham.

Given all the negative test results, however, our pediatrician is becoming more and more certain Latham may simply have something called Toddler’s Diarrhea.  She says sometimes, toddlers have chronic diarrhea and there’s no real reason for it.  It’s not what he eats.  Its not what he drinks.  And it’s not his surroundings.  It’s just a chronic condition that most toddlers grow out of at some point as they age.

And I hope that’s all it is.  Please, let that be all it is.

It’s Up to Us

Tuesday, April 6th, 2010

“Huh,” was the only sound she made, my doctor, when I told her my diagnosis.  “Toddler’s Diarrhea,” I told Doctor  Holly,  “I think Latham has Toddler’s Diarrhea.”

I had been researching my 23 month old son’s symptoms ever since our doctor said I should have him tested for Cystic Fibrosis.  Latham had been suffering with chronic diarrhea and severe weight loss for 6 weeks and after a series of tests ruled out viruses and parasites, Doctor Holly revealed chronic diarrhea and severe weight loss are also symptoms of  Cystic Fibrosis.

As soon as she said it, I freaked.  But the more I read about the genetic disease, the more I believed my baby did not have it.  So, I started researching what Latham might have.

I typed ‘diarrhea in toddlers’ in the google search engine and Cystic Fibrosis was the first bullet to appear.  The second: Toddler’s Diarrhea.  According to Keep Kids Healthy, Toddler’s Diarrhea usually occurs in children between the ages of 6 months and 3 years and causes loose, watery stools.  Although they have chronic diarrhea, children with Toddler’s Diarrhea have a normal appetite and grow and develop normally, and usually drink juice.

BINGO!

After nap, every day, Latham begs for juice.  Although I only give him about 4 ounces of apple juice a day, mixed with water, I was hopeful Toddler’s Diarrhea was the diagnosis, not Cystic Fibrosis.  I pulled juice from Latham’s diet immediately.  And immediately began to see results.  Less than 24 hours later, Latham’s watery diarrhea began to firm up; 48 hours later, he had nearly normal stools; now, 2 weeks later, not only are his stools solid, he has gained 4 of the 5 pounds he lost during the last 2 months.

When I told Doctor Holly about Toddler’s Diarrhea, we had just tested Latham for Cystic Fibrosis.  She was calling to say our son did not have the deadly disease.

“I haven’t given Latham any apple juice all day,” I said after she revealed Latham did not have Cystic Fibrosis and asked how he was doing, “and I think it’s working already!”

“Oh,” she paused.  “I guess we’ll keep an eye on that,” was her only response.  “Just make an appointment if you think Latham needs to be seen again,” and with that, she hung up.

I have never been so happy and so irritated by someone in my entire life.  Happy that she just told me my son does not have Cystic Fibrosis and irritated that she just went from saying he could have Cystic Fibrosis to saying we’ll just keep an eye on him.  She didn’t say a word about the possibility of him having Toddler’s Diarrhea.

Not.  A.  Word.

Well, I’ve got a word for her.  Three of them, actually:  Latham is healthy!  And we couldn’t be happier.

I’m also happy I didn’t just wait around for Doctor Holly to tell me what was wrong with him.  I can’t imagine how much more weight my son would have lost, how sick he would be, and how many more tests would have been run trying to find out the cause of his severe symptoms.

I listened to my inner instincts.  I discovered what has wrong with him.  I did something about it.  And I am proud of myself.

I’m not saying I’m a doctor.  I’m not saying I can diagnose every problem.  What I am saying:  we know our children better than anyone else, even our doctors.  And it’s up to us to listen to our instincts and fight for our babies, especially when they can’t fight for themselves.