Posts Tagged ‘doctor’

The Good News Is You Don’t Have Any Tumors

Thursday, January 19th, 2012

“The good news,” he says to me, “is you don’t have any tumors.”

I thought he was joking at first, the radiologist, but I could see from his scowl he was serious.

“But you do have other issues going on,” he says slowly, ”that’s for sure.”

Of course I have other issues.  Who doesn’t?  But I assume he’s referring to something other than my garage door compulsion.  I mean, does anyone else drive around the block just to make sure it’s closed?

What?

Just me?

Oh.

“You have acid reflux,” the doctor continues, “which is bit bizarre since that’s something old people like me have, not you.”

My family physician warned me I might have acid reflux.  When I sat on her paper coated padded table a couple days prior and complained about a weird lump in my throat, she said I was describing a text book acid reflux symptom.  But she said I should see a specialist for more tests, just in case.

“What other issues are going on,” I ask.

I could tell he either didn’t want talk or didn’t have time to talk, either way, he was going to talk.  I mean, I just swallowed a bunch of barium for him, the least he could do was talk for me.

“Well,” he begins, “your general practitioner will go over the results with you in detail, but I did discover, in addition to your acid reflux, you have a hernia, an ulcer, and a belly full of harmful bacteria.”  After taking a big breath he continues, “But don’t worry, you’re not contagious.”  And with that, he smiled and walked away.

The nurse told me to get dressed and not to worry.  “Your doctor will go over your results in detail,” she repeats, again.

When I met with my family physician the next day, she sucked her breath through her teeth when she walked in the room where I was waiting before saying, “you have a lot of issues going on.”

“I guess,” I agree.

She pulls out her pad and writes me 6 prescriptions.  I am now popping 20 pills a day, every day, for the next 14 days for acid reflux, a belly full of bacteria, a hernia, and an ulcer. 

And it’s been brutal.  Real.  Brutal.

I’ll spare you all the incredibly gross and incredibly gory medication side effects.

You’re welcome.

It’s Like I Can Breathe Again. And I Didn’t Know I Was Holding My Breath.

Monday, November 15th, 2010

His lips are moving, but I can’t hear him.  The second the specialist says Latham is healthy, my head floods with water.  And the waves crashing in my mind make it impossible for me to listen to what the pediatric gastroenterologist is saying. 

So I squint.  And try to read his lips.  But I can’t.

I glance at David and hope he’s hearing, but when I ask him later to repeat what the doctor said, he can’t. 

So we try to put together our puzzle starting with the boarder and working our way in, and yet, we’re missing pieces – big pieces – and we don’t have the box to guide us.

When we get home, I call the Children’s Hospital and leave a message for the doctor.  When he returns it, he says he’s not surprised when I tell him I couldn’t really hear what he was saying.  He says it happens all the time when he delivers both really good and really bad news.  And he couldn’t be more thrilled, he said, to give us the really good kind.  Again.

He says Latham is healthy.  He does not have Cystic Fibrosis.  He does not have Celiac Disease.  He does not have Irritable Bowl Syndrome, food allergies, Leukemia, or any of the other awful diseases or conditions our toddler has been tested for.  What he does have:  Toddler’s Diarrhea, a condition that usually occurs in children between the ages of 6 months and 3 years, and causes loose, watery stools and severe weight loss.   Although Latham does have chronic diarrhea, the doctor went on to say, children with toddler’s diarrhea do have a normal appetite and grow and develop normally.

Latham has suffered on and off with chronic diarrhea and severe weight loss for the past 8 months and we’ve been relentlessly searching for answers to his health problems for just as long.  It has been a long and scary road for our family and we are extreemly relieved to finally have an answer to the problem that’s been plaguing him. 

It’s like I can breathe again.  And I didn’t realize I had been holding my breath.

I also want to thank all of you for sharing in this journey with us.  We appreciate your supportive comments, thoughts, and prayers, more than you could ever know.  Thank you.

Toddler Talk

Wednesday, May 26th, 2010

Reichen:  “Mommy!  Mommy!  That lady is squeezing my brother!  HEY LADY!!!  STOP SQUEEZING MY BROTHER!!!”

What my 3 year old screamed at the nurse while she gave Latham his 2 year old immunizations today.

It’s Up to Us

Tuesday, April 6th, 2010

“Huh,” was the only sound she made, my doctor, when I told her my diagnosis.  “Toddler’s Diarrhea,” I told Doctor  Holly,  “I think Latham has Toddler’s Diarrhea.”

I had been researching my 23 month old son’s symptoms ever since our doctor said I should have him tested for Cystic Fibrosis.  Latham had been suffering with chronic diarrhea and severe weight loss for 6 weeks and after a series of tests ruled out viruses and parasites, Doctor Holly revealed chronic diarrhea and severe weight loss are also symptoms of  Cystic Fibrosis.

As soon as she said it, I freaked.  But the more I read about the genetic disease, the more I believed my baby did not have it.  So, I started researching what Latham might have.

I typed ‘diarrhea in toddlers’ in the google search engine and Cystic Fibrosis was the first bullet to appear.  The second: Toddler’s Diarrhea.  According to Keep Kids Healthy, Toddler’s Diarrhea usually occurs in children between the ages of 6 months and 3 years and causes loose, watery stools.  Although they have chronic diarrhea, children with Toddler’s Diarrhea have a normal appetite and grow and develop normally, and usually drink juice.

BINGO!

After nap, every day, Latham begs for juice.  Although I only give him about 4 ounces of apple juice a day, mixed with water, I was hopeful Toddler’s Diarrhea was the diagnosis, not Cystic Fibrosis.  I pulled juice from Latham’s diet immediately.  And immediately began to see results.  Less than 24 hours later, Latham’s watery diarrhea began to firm up; 48 hours later, he had nearly normal stools; now, 2 weeks later, not only are his stools solid, he has gained 4 of the 5 pounds he lost during the last 2 months.

When I told Doctor Holly about Toddler’s Diarrhea, we had just tested Latham for Cystic Fibrosis.  She was calling to say our son did not have the deadly disease.

“I haven’t given Latham any apple juice all day,” I said after she revealed Latham did not have Cystic Fibrosis and asked how he was doing, “and I think it’s working already!”

“Oh,” she paused.  “I guess we’ll keep an eye on that,” was her only response.  “Just make an appointment if you think Latham needs to be seen again,” and with that, she hung up.

I have never been so happy and so irritated by someone in my entire life.  Happy that she just told me my son does not have Cystic Fibrosis and irritated that she just went from saying he could have Cystic Fibrosis to saying we’ll just keep an eye on him.  She didn’t say a word about the possibility of him having Toddler’s Diarrhea.

Not.  A.  Word.

Well, I’ve got a word for her.  Three of them, actually:  Latham is healthy!  And we couldn’t be happier.

I’m also happy I didn’t just wait around for Doctor Holly to tell me what was wrong with him.  I can’t imagine how much more weight my son would have lost, how sick he would be, and how many more tests would have been run trying to find out the cause of his severe symptoms.

I listened to my inner instincts.  I discovered what has wrong with him.  I did something about it.  And I am proud of myself.

I’m not saying I’m a doctor.  I’m not saying I can diagnose every problem.  What I am saying:  we know our children better than anyone else, even our doctors.  And it’s up to us to listen to our instincts and fight for our babies, especially when they can’t fight for themselves.